But seriously, that looks really concerning. What is your prognosis?
HeatherJMD on
Congratulations? 😬 Good luck, dude
Picolete on
Good thing it seems bening, get well
SeenInTheAirport on
Thank you for sharing. Haven’t seen that ever
Chanocraft on
How did your doctors even know to look for it if it’s so incredibly rare? In my experience, trying to get doctors to do anything that requires having to ask my insurance for permission, unless it’s plainly obvious it’s needed, is like trying to convince a cat to jump into a pool
Hushwater on
Congratulations on the rare tumor
patricksaurus on
What a wild experience. I’m so glad to hear there is a successful therapy and you’re gonna be fine.
I hope you don’t mind if I ask about the personal journey through the medical machine. How was the diagnostic process for you? Were symptoms minor at first, and you went to a family medicine doc who tried a few things and referred you out, or was the first indication something that required hospitalization? Did you have to bounce between specialists to get a diagnosis due to the rarity, or was the radiologist basically the most fearless motherfucker on the planet and signed off on a 1 in 10 billion diagnosis? Sometimes you feel like a person, sometimes you feel like an experiment, and other times, you feel like a bag of meat hanging on rocks. I’m just so curious about that part of the process.
To commiserate a little: when you go through something like this, one thing you realize that you don’t want to be is “interesting” to seasoned physicians.
I have a much more common (but still very rare) condition. The first time I went to hospital, in the day or so before the cause of my symptoms was determined, tons of doctors were streaming through my room to check me out. All pleasant and professional, but clearly interested in obtaining the experience and education that comes from firsthand contact with something they may not see again (soon). Mine is a blood thing with a neurological component, so some were asking me examination-type questions about sensory disruptions, some were asking much more human questions (“why did you wait three weeks to come in?”).
Even now, my condition is idiopathic but controlled by medication. However, if I experience a constellation of symptoms altogether, I have to go get imaging done ASAP. On these trips, I always encounter a few legitimately interested and curious doctors. Some want to perform cursory examinations on me, still, but most just want to talk at this point… my chart is pretty thick and if they’re curious, reading is faster than an interview.
papersauce-has-bones on
Over achiever
No_Volume_8345 on
At a glance, it looks like it’s inside your penis. Glad it’s not fatal.
10 Comments
Ahh yes, these are words.
[Found a relevant scholarly article](https://pubmed.ncbi.nlm.nih.gov/37334821/)
But seriously, that looks really concerning. What is your prognosis?
Congratulations? 😬 Good luck, dude
Good thing it seems bening, get well
Thank you for sharing. Haven’t seen that ever
How did your doctors even know to look for it if it’s so incredibly rare? In my experience, trying to get doctors to do anything that requires having to ask my insurance for permission, unless it’s plainly obvious it’s needed, is like trying to convince a cat to jump into a pool
Congratulations on the rare tumor
What a wild experience. I’m so glad to hear there is a successful therapy and you’re gonna be fine.
I hope you don’t mind if I ask about the personal journey through the medical machine. How was the diagnostic process for you? Were symptoms minor at first, and you went to a family medicine doc who tried a few things and referred you out, or was the first indication something that required hospitalization? Did you have to bounce between specialists to get a diagnosis due to the rarity, or was the radiologist basically the most fearless motherfucker on the planet and signed off on a 1 in 10 billion diagnosis? Sometimes you feel like a person, sometimes you feel like an experiment, and other times, you feel like a bag of meat hanging on rocks. I’m just so curious about that part of the process.
To commiserate a little: when you go through something like this, one thing you realize that you don’t want to be is “interesting” to seasoned physicians.
I have a much more common (but still very rare) condition. The first time I went to hospital, in the day or so before the cause of my symptoms was determined, tons of doctors were streaming through my room to check me out. All pleasant and professional, but clearly interested in obtaining the experience and education that comes from firsthand contact with something they may not see again (soon). Mine is a blood thing with a neurological component, so some were asking me examination-type questions about sensory disruptions, some were asking much more human questions (“why did you wait three weeks to come in?”).
Even now, my condition is idiopathic but controlled by medication. However, if I experience a constellation of symptoms altogether, I have to go get imaging done ASAP. On these trips, I always encounter a few legitimately interested and curious doctors. Some want to perform cursory examinations on me, still, but most just want to talk at this point… my chart is pretty thick and if they’re curious, reading is faster than an interview.
Over achiever
At a glance, it looks like it’s inside your penis. Glad it’s not fatal.